General · Personal

this has personal resonance- Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn — Ehlers-Danlos News

Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will suffer deeply if Britain leaves the European Union (EU), as scheduled, at the end of this month. Collin is an expert on the subject. For her University of Bathdissertation, she analyzed Brexit’s long-term impact on the 3.5 million people in England,…

via Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn — Ehlers-Danlos News

General

No Discrimination

There’s no discrimination here,

they’re all on perfect behaviour,

equality sits at their core

as they block someone’s access door

leaving no space for their scooter,

 

There he is, playing our savior,

marking this moment to savor

as if accepting his reward,

there’s no discrimination,

 

At least he has stopped looking bored,

in fact, they all stand quite assured

captured by news photographers,

unnoticed by the broadcasters;

A human’s safety needs are ignored;

there is no discrimination.

 

Antonia Sara Zenkevitch

 

N.B if you haven’t read my other posts, I’m not a fan of our present government, or of Brexit. But I don’t trust Corbyn and the leadership of the opposition either. UK politics is a shambles. Beyond politics of left or right, leave or remain (I hope remain) there is the issue that no one should be blocking the essential access of a person with mobility needs by holding a rally outside their access door when a sign clearly requests this area be kept clear.

 

Democracy · General

Madame Dictator

 

Madame Dictator, have you not heard

Your deal was voted down historically

And yet you resurrect the interred

Proposal repeatedly, delay after delay

Burning our security & democracy away,

 

Your office not conferred

By any political majority,

You do not listen to a word

From any, except, perhaps, the ERG

Who need an ECG

To find out if they have a heart

Because they seem intent

Only on ripping us apart,

 

But you, Madame Dictator,

Like a modern Bonaparte

Say you hear

But you do not!

Stirring up terror

By running down the clock,

 

Perhaps it’s said best by Andy Serkis;

Your attitude to this rambling failure

Akin to Gollum’s with his ‘precious’;

A gold that deserved the fires of Mordor

But instead you throw our futures in

To that furnace, knowing it will make this nation so much poorer

As the homeless line the streets and food bank ques get longer,

And the extremists get stronger

And injustices reign – those you said you’d bring to order

Yet you disengage to build walls of fire at our borders

And, as for climate change …

 

You focus only on Brexit

But do so without debate

Hushing up all the elected

Tying nation states up in red tape

 

More than

Two years!

Two years

And more!

 

In a cabal of your own

Prescribed parameters,

Your negotiations

In closed door deliberations

And perambulations

As you ignite more tensions

With another deadline gone,

I have literally lost count!

Every time you tell the Commons

There will be later debate

Then roll the calendar on;

The dates for meaningful votes

Eternally postponed,

Except that historic one

Where the deal was trodden on,

The same deal you resuscitate,

 

 

All the while that lie ‘secure and stable’

When there’s nothing on the table

And security service cutbacks

Coincide with terror attacks

And there is legislation against

Generations told to go back

To the commonwealth after decades of life and work in the UK,

So, just because they are black

You citizens to go away,

And now, will more Europeans face the same?

 

I visited Yalswood, while you were Home Secretary,

Children and women fearing their fate,

Caucasian guards, all black and ethnic minority

Detainees – I thought, mine is a racist state,

My friend was denied vital medicine

They took my prints before I could go in

The package of essentials I left

Was only passed on after five days,

She had to fight for legal representation,

Hers not an uncommon story,

I’ve known others, one girl just fourteen,

Britishness part of her identity –

Her humanity you refused to see,

 

How dare you, in self-righteous glory

Proclaim you understand democracy

If you can’t see their lives matter!

 

 

Now,

Your promises in tatters;

When you said you’d listen,

See how skilfully you didn’t,

Your cabinet found in contempt

Of our disjointed constitution,

 

This is wrong! The is so very wrong!

This is becoming authoritarian

And very, very, very dark!

 

You have polluted

“Safe and Secure”

“Meaningful”

“Democracy”

“Listening”

“Vote” –

 

All convoluted

By you

Until the words stick in my throat –

 

And you call this your mission;

To re- enforce your indecent proposition

After the worst historical democratic defeat in the entire history of any Westminster government!

All you are reinforcing are the fault lines of division,

 

And, for the record, I’m not impressed by Corbyn

So, please don’t read this as propaganda

For a weakly lead, anti-Semitic opposition,

Though I will state I’m firmly left of centre

This is less about sides and more concerned

With the slide towards totalitarianism,

 

Only idiots will say it is because you’re a woman,

Though they do, pouring on scorn

For all the agelessly wrong reasons,

As they try to make you dance,

Or comment on your complexion,

In this alone I come to your defence

Yet my complaints could fill a lexicon

From your term feeding hate in the Home Office

Displaying a personal distaste towards migration

To this cutting off of deliberation in Parliament,

It’s not gender defining each subverted action

So, I will not hold back because I’m a feminist;

 

I will call you Madame Dictator,

A title not up for discussion

Unless you decide to govern better

And return the dignities you’ve taken.

 

Antonia Sara Zenkevitch

 

General · Personal

Inspiration Porn

This is a zanze I wrote, posted on my old blog. It’s about certain views on disability, chronic illness and women:

Antonia Sara Zenkevitch

I’m not your inspiration porn

For you to sensationalize

As your source of motivation

For your more abled-bodied lives,

Not your inspiration

Or measure of your skill,

A Paralympian

Nor life uncured to kill,

I’m not your porn,

Objectified

For you to own

Or criticize,

Not your

Provocation

Your stimulus or spur;

I’m not your inspiration porn.

Antonia Sara Zenkevitch

View original post

Democracy · General

Unlock

Unlock

This deadlock

Of flailing democracy

Before we’re locked inside

A falling fortress time forgot

Half our number failing to perceive

We are becoming what we are not

A thing our future won’t believe

Warped by horrors of austerity

Fragmented by painful pride

Becoming dark histories

The public outcries

No alibis

For lies

Unmet

Needs

Breed

Crimes

Lines

                           At foodbanks to feed

Lives

                         Identities redefined

     Maligned

                                This is oppression’s seed

                               Partition and hypocrisy

                              Please heed and unlock

Antonia Sara Zenkevitch

Culture · General · Personal

Once

I shared a Britain Europeans could call home

In the four decades my skin was called my own,

One day I’ll tell our Islands’ descendants

I shared a Britain Europeans could call home,

Before the dice of jeopardy was thrown

And all that amity was gone and done

In the four decades my skin was called my own,

I shared a Britain Europeans could call home.

 

Antonia Sara Zenkevitch

 

This is the second Triolet I’ve written in as many days, inspired by a challenge set by a wonderful poet whose diverse work can be seen at https://reowr.com/ . My first triolet was 48 Percent Life, which is perhaps a better poem structurally than my second attempt at this form, but I’m enjoying this particular type of poem.

Democracy · General

The Stolen Sun

 

They worked for decades

For their place in the sun,

As their autumns fade

They claimed their freedom

From the ache of the rain

In their muscles and bones,

Now they ache to remain

In their retirement homes,

 

This was not given to them;

They got there on their own,

Is their security to be stolen?

The seeds of doubt are sown;

 

European citizens in Britain

Are now treated as hostages,

So, their nations of origin

Do the same in this crisis,

 

This questions the concept of belonging;

Belonging to; belonging with; belongingness,

Both the forces of comfort and longing

And the money and belief we each invest

In the places we choose to be living,

 

We need to be honest

In this state of anti-immigration;

We have to own this

Process of individual rights negation,

History tells us Britishness

Is formed of centuries of integration,

 

Will we continue to count as less

All those who come to our nation

And add to its worth and essence?

Our ex-pats too will be distressed

If our neighbours devalue their presence,

 

This is Brexit’s darkest side, undressed;

Naked of all the abhorrent pretense

in the lies that sought to impress

Some citizens sitting on the fence,

 

To say we Brits can live anywhere

Yet limit who comes here makes no sense,

Yet many a Brexiteer seems unaware

Their acts may have weighted consequence.

 

Antonia Sara Zenkevitch